Dream connections

I had one of those dreams last night. You know the sort: you find yourself in a familiar but very old environment, something is about to happen and you’re totally unprepared. It might be high school or college and you’re on your way to a test, but not only did you not study, you’re not even sure you attended any classes! Or maybe you find yourself back in elementary school, sitting under a desk in your underwear, wondering how you’ll get through the day without being noticed.

Last night I dropped my daughter off at school and someone reminded me of a PTA meeting I’d promised to attend that was about to start. I drove straight to the host house, dropped my coat in an empty room, and wandered around noticing parents I hadn’t seen since my pre-empty-nest days. I wondered why some of them looked at me oddly until I remembered I’d forgotten my wig. I was wandering through a crowd of people who didn’t know I had cancer, announcing the fact with my patchy, scraggly, white, cellophane-like hair.

When I have one of these very vivid dreams, I like to lie in bed and hold onto the feelings it evokes. I think that helps me better understand my waking emotional landscape. This dream carried a heavy sadness I don’t like to indulge when I am awake. It underscored my self-consciousness, my loneliness, and even a sense of guilt.

I have cancer. I am alone and frightened. I have wonderful people who think about me and care about me and know the full extent of my health situation through things I’ve written in this blog. But the truth is, this adventure brings a very painful sense of detachment. Some of you have said: I don’t know how you do it. Well, I don’t know how I do it either. I mean, mostly I just put my head down and plod through day by day. But sometimes I look up and try to see further than next week, and I get really scared.

Head-down-plodding gets you only so far. I’ve applied all my competence to getting through the cancer crisis and it seems to be working. But in the process, I’ve neglected other things. My life feels like a big chaotic mess to me right now, and that’s the part I don’t know how I’ll get through.

All this from a dream.

Still the side effects

Last week, about two weeks after an Abraxane infusion, I lost my hair for the third time. This business of growing and losing hair is one of the conditions I have to accept until the whole of the treatment is complete. I had another Abraxane infusion this morning, but I don’t have much hair left to lose. It grows back a bit between cycles, when I have an extra two Abraxane-free weeks. Just when it starts looking cute again, it’s time to lose it. I’m not fond of this process.

During the 42-day drug-taking phase that includes two Abraxane infusions and a nightly Temodar pill, I have a number of other side effects to manage. Temodar and Zofran, the anti-nausea pill I take with it, can cause headaches, constipation, heartburn, itchiness, hives, and who knows what-all else! In my case, headaches can take the form of migraine auras. My doctor agrees that they’re probably the same old stress-induced phenomena I’ve experienced for nearly thirty years, but next time it happens she may send me for an MRI.

Before my nurse starts administering Abraxane, I get intravenous doses of Benadryl, Pepcid, some steroid whose name I never remember (Dexamethasone), and another anti-nausea drug (Kytril). I get powerful doses of all of these to counteract the effects of the killer Abraxane. I leave the treatment room feeling groggy from the Benadryl. By tomorrow I’ll be speedy and energized from the steroid and that will last for two or three days. I'll also lose my sense of taste for three or four days between now and the weekend.

“Do you experience neuropathies?” my treatment nurse asked.

“What’s that?”

“When irritated nerves numb your fingers and toes and make them tingle.”

“Come to think of it, I do. My toes tend to feel that way when I wear anything more restrictive than Birkenstocks. I didn’t know that was a symptom too.”

I’m looking forward to the time when a headache is just a headache, and I can try out my spiky white (hopefully curly) hairdo on the world.

Hair today, gone tomorrow

Nearly two weeks ago, a couple of days after my last Abraxane infusion, my skin was very tender to the touch, particularly on top of my head. It was a symptom I remembered from the earlier treatment cycles, and I took it as a sign that my scalp was preparing to give up its recent crop of newly grown hair. But it didn’t happen.

I met with my doctor this morning and mentioned that I still have hair. Her reaction amounted to “Go figure.” She told me that another of her patients just went through his entire first cycle without losing his hair. Another medical mystery, and from my point of view, not an unwelcome one. It was easy getting used to having hair again.

Tonight I sat down to my computer and noticed short white hairs all over the keyboard. I tugged at locks and they came out in my hand. Oh well. Once again, I’ll be bald by the end of the week.

Feathers

“Wanna see something funny?” I asked my daughter recently while lifting off my wig.

“You’re covered with fuzz!” she exclaimed. “How cute.”

It’s been several weeks since my last Abraxane infusion, the drug that caused me to lose my hair. My head is now covered with hair, feathery and white. It’s not long enough to really keep me from looking bald, and there’s a good chance I’ll lose it again. But in the meantime, it’s pointing the way to what I have to look forward to.

Sometime in the not too distant future I have a decision to make. I would so love to be free of the expensive and time-consuming color habit I never wanted to start in the first place, but once started, I’ve faithfully maintained for the past fifteen or so years. I’m genetically disposed to white hair, but it’s something I was never prepared to welcome on my head. It reminds me too much of my grandmother, who had the snowiest of snow white hair from the earliest I remember her. Now when I see pictures of my young grandmother in her mid-forties, I’m amazed at her young face. That white hair was such a striking statement of “old” that I never got past.

The wig I wear is very close in color to what my hair salon came up with for years. It’s a good match for what my color used to be. But as we age, our skin tone mellows. Mother Nature is the perfect colorist and what she has come up with for me now is white hair to go with my toned down skin. When I see myself bare-headed in the mirror I’m struck with how the halo of white actually brightens up my face.

But then there’s the “old” thing. White hair will always seem old. Am I ready for it? Such a dilemma!

I’d like to post a picture here, but I’ll give it a couple more weeks to grow in before I have another Abraxane reaction and it starts falling out again. Maybe my friends can help me decide. Although, truth be known, who's actually going to tell me I look old?!